February 20, 2010

Note from Anne:

Jeff spent this past week in the hospital.  He's having problems with his gastointestinal system related to ALS progression, minimal mobility and side effects from medications.  I won't detail everything to allow Jeff some privacy.

This has been challenging week emotionally and physically for our family.  There are other issues that have surfaced since his hospitalization and some of them require constant and vigilant attention.  I can honestly say that I am worn out and in need of some renewed strength.  Thank God for Nick and Tyler!

Please keep us in your prayers.  As always, thank you for your support and kind words.

January 1, 2010

Happy New Year!  Hopefully 2010 will bring laughter and love to all.

There have been many changes with Jeff's mobility over the past couple of weeks.  We are now using a hoyer lift to transfer him because he cannot walk anymore.  Standing is also difficult because the muscles in his legs and torso are so weak.  It seems we are always facing new challenges.  Thanks to those who continue to support us through our journey.

December 8, 2009

Note from Anne:

Jeff had his sleep study last night.  Good news---no breathing problems detected during sleep so he doesn't need BiPAP yet.

Ready or not, here comes winter!

November 22, 2009

Note from Anne:

It's been an emotional week.  Jeff had ALS clinic this past Thursday.  His breathing test did show some lower results so he will be having a sleep study in the next couple of weeks and will probably start using bi-pap.  He is again showing signs of increased weakness and fatigue.  There will be more changes to his routine to accomodate these observations and change isn't easy for him. 

Thanks to family and friends for being patient with our moods and shouldering some of the load we carry.  We love you!

Please keep in touch with Jeff by facebook or email.  He could use some extra TLC these days.

November 5, 2009

Note from Anne:

Jeff is generally becoming weaker.  He struggles with taking short steps and pivoting even with our help.  Despite daily range of motion exercises, he has decreased flexibility in the fingers of his right hand.  He has been complaining of pain in those fingers recently.  I believe it is a combination of stiffness and cramping.  This poses problems when he tries to operate his wheelchair and grasp his walker.

He is still able to enjoy pureed/soft food once a day although he is having more coughing spells with this.  He really has to focus on the coordination of breathing and swallowing.

Jeff’s sleep is becoming a little more restless.  He awakens frequently at night trying to get comfortable.  I’m suspicious that he may be having some oxygenation issues but he denies feeling short of breath.  We’ll see what his breathing test shows when he goes to ALS clinic on 11/19.

All of us have received the seasonal flu vaccine but the H1N1 vaccine has yet to become available to Jeff.  Fortunately, we have avoided illness in our house this fall.  It is imperative that Jeff not be exposed to colds/flu or else he could be in big trouble.

I’m sure many of you are aware that Jeff has a special communication device that allows him to contact friends and family through email, text messaging, facebook and this website.  He is addicted and he loves it! 

It is such a relief to have Nick home.  He has been a huge help.

Tyler is wrestling with many emotions because of Jeff’s decline.  However, he finds strength in his big brother and is more willing to help care for his dad lately.  I am so proud of him.

Take care and enjoy today!

October 23, 2009

Happy 43rd birthday Jeff! 
All our love,

Anne, Nick and Tyler

October 10, 2009

September 26, 2009

Note from Anne:

It's been a while since I've made an entry.  Life around the house was hectic and frustrating for a few weeks at the end of August and beginning week of this month.  I think Jeff is calmer and more comfortable with the many changes in his routine now. 

The golf benefit was exceptional!  Many thanks to all involved.  Jeff, Tyler, Nick and I feel very loved. 

I will post pictures from the benefit once I receive additional photos from family members.  Please forward any pics to me because I didn't take any myself.

Nick will move home in about two weeks to help me care for Jeff.  I am very excited to have all of us together as a family again.

Blessings to all!

August 18, 2009

Note from Anne:

I cannot believe how fast this summer is flying by.  I was able to spend a few short but wonderful days at Rainy Lake with my aunt and uncle a couple of weekends ago.  I fished like a mad woman and had better luck than usual.  Thanks to Jeff’s parents and some great friends for helping while I was away.  During my absence, Jeff had a surprise visit from his Aunts Marge and Aileen and Uncles Jim and Chris.  He said it was a lot of fun having them around.  

Two days after I returned home from Rainy, Tyler broke a bone in the pinky finger of his right hand.  The fractured bone is located below his knuckle and he’ll be in a cast for 2 weeks and then a buddy splint for probably another 2 weeks.  Luckily he is not in any pain and he’ll heal quickly.  His main concern is that he’ll be mended enough by Jeff’s benefit to play golf.

Jeff had another ALS clinic visit last Thursday.  There weren’t any big changes noted.  His breathing is holding steady so he doesn’t need any assistance (Bi-PAP) right now.  

I believe Jeff's communication device will get easier for him.  He has been playing with it and figuring out what he can do and what needs tweaking.  Our “communication guy” is coming out again on Friday to work with him again.

Jeff received his new wheelchair yesterday.  He is very frustrated.  There are several adjustments that will need to be made for it to be more comfortable for Jeff.  The guy that delivered the wheelchair was here for 2 ½ hours and tried his best yet there’s more to do.  Until we get this all worked out, Jeff will not use his new chair but will continue to use the old loner chair.

My dad has been here since last Friday and will be leaving for Chicago this Sunday to get ready to teach this fall.  My brother Ben arrives on August 24^th and will leave on Sept. 9^th.    And then…  I shudder to think what I’m going to do until Nick moves back.

July 30, 2009

Note from Anne:

Weare working out the kinks with Jeff's communication device.  The voice activated communication portion works well but accessing the internet and email using a headpointer has been frustrating to say the least.  We will keep plugging away at the problems but it may take some time to rid the stumbling blocks.

We are patiently awaiting the arrival of Jeff's new wheelchair.  Once we have the w/c,  the communication device can be mounted on it. We will also have a locking device mounted on the bottom of the chair for use in the van.  This will replace the 4-point restraints and make it easier to secure Jeff in the van.

I cannot stress enough how much I am grateful to my dad for helping out this summer. I am starting to get somewhat anxious anticipating his departure back to Chicago and Tyler starting high school because there will be limited assistance around the house.  Fortunately, Nick has accepted my invitation to move home after he graduates in December.

Jeff is exhibiting more personality changes related to his dementia.  Some days this really tests all of our limits.

We wish to send our thanks again to all of you who love and support us.  It strengthens us to know we are not in this journey alone.

July 14, 2009,

Note from Anne:

Jeff had an appointment with the pulmonologist today.  His biggest problem right now is thick secretions which prompt him to clear his throat often and sleep with the head of his bed at a 45 degree angle. Jeff's breathing muscles are weakening but he is not requiring any assistive devices yet. He has a follow up appointment in a month at his ALS clinic.

He received his communication device finally but is unable to use it until we have it programmed correctly.  Next Thursday we have someone coming over to assist with this.  Jeff cannot wait to access the internet!

Thanks again for your love and support.

July 4, 2009

Note from Anne:

Happy 4th! 

Not much to report these days.  It seems as if Jeff's getting weaker a little bit more every day and he requires much supervision for safety reasons.  His moods are more labile than they used to be but he is still lovable.  He is anxious to get his communication device so that he can surf the internet and read his emails and website guestbook himself.  The computer we have is not easily accessible to him anymore so he relies on me to update him.

Have a safe and fun holiday.

June 21, 2009

Note from Anne:

Thanks to each of you who helped care for Jeff and Tyler while I was in Dubuque attending the opening of Ben's art exhibit.  Ben is truly talented!

Jeff had a small mishap yesterday prior to my arrival back home.  He lost his balance and fell again.  He managed to jam his right thumb and sprain it but he is tough and doesn't complain of any pain.

Happy Father's Day to Jeff and all of the other great dads out there.

June 16, 2009

Note from Anne:

There's not much to report since the last diary entry.  Jeff has been holding steady as far as his health goes.

I haven't noticed any obvious changes in Jeff's breathing.  He has a follow up appointment with a pulmonologist in mid July.

Thanks to all of you who support us each and every day!

 

June 5, 2009

Note from Anne:

Jeff had his 3 month ALS clinic visit yesterday.  We did not anticipate hearing any surprising news, however, we did.  Jeff’s breathing test results showed that his breathing is now being affected by his ALS.  It is not clear how significant the change is at this time.  Jeff’s results do not exactly correlate with his symptoms.  In other words, Jeff doesn’t complain of shortness of breath and he denies having trouble sleeping at night, among other things.  I will be monitoring him closely when he sleeps over the next several days to see if he has episodes of gasping or seems to have a disruptive sleeping pattern.  Last night I observed him for about 3 hours.  He did breathe a little more heavily but nothing too alarming.

Jeff will be evaluated by  a pulmonologist in a few weeks to see if he needs to have a sleep study yet.  Eventually, a sleep study will be warranted but it is a one time deal and the timeliness of the study is important.  Jeff is also scheduled to return to the ALS clinic sooner than 3 months from now to be reevaluated. 

There will be a point when Jeff will require a machine to assist him with inhalation and exhalation.  The machine is called a Bi-PAP.  The breathing tests, sleep study and thorough history of any changes in Jeff’s respiratory status help determine when he will need the Bi-PAP.

Thank you for your prayers.

May 27, 2009

Note from Anne:

I hope everyone had a nice Memorial weekend.  Maureen, Russ and both of my parents were here visiting. 
Jeff is doing pretty well lately and has been enjoying the warm weather. He has healed from his previous fall.  The wheelchair accessible van and the platform lift really make life easier for him.
Thanks to all who continue to provide assistance to our family.

May 13, 2009

Note from Anne:

We spent too many hours in the ER last night and didn't get to bed until 2 a.m. Jeff took another hard fall which resulted in a deep chin laceration.  The impact also caused pain in his neck but the CT scan showed no injury.  Jeff bled quite a bit from his chin and also had a strange reaction after he was injected with numbing medicine for stitches.  His entire body began to tremor but he was conscious throughout the episode.  Blood tests revealed that he is somewhat dehydrated and anemic.  We are not sure what the cause is but he has a full physical scheduled for tomorrow morning.

My dad stayed home and calmed Tyler while our neighbor, Trevor, accompanied Jeff and me at the hospital.  Thank you for your assistance and moral support!

FYI-- We will finally be the proud owners of a wheelchair accessible van later today.  It couldn't be soon enough.

 

May 12, 2009

 

Note from Anne:

This past week went much smoother.   No big news to report about Jeff’s health.  My dad arrived on Mother’s Day and is here to help for the majority of the summer.  My brother Ben will be here for a month after my dad leaves in August.

If you are in Dubuque during Ben’s art exhibit, please stop by to browse.

May 10, 2009

Happy Mother's Day to all the great moms out there! 

May 3, 2009

Note from Anne:

Jeff wishes he could type some of the entries in his diary but it is too difficult with the equipment we currently have.  Soon he will have a laptop communication device with wireless internet access.  ETA is mid-late June.  Hopefully the laptop will allow him to communicate more freely online.

It has been a terrible week but the week is now behind us.  Today was beautiful and we made it through without incident.  Thank God for small favors.

Thanks to those who helped us carry the load during the rough times this week.  We love you all!

April 26, 2009

Note from Anne:

Jeff has been feeling a little better each day since his concussion.  There are still some subtle signs that he has not completely recovered but he is happy to be home and not feeling lousy.

This week has been very busy.  The platform lift installation began this past Wednesday and hopefully it will be completed by tomorrow evening.  There have been a few glitches that contributed to the delay but all will be ironed out in the end.

I began shopping for a wheelchair accessible van.  There's a lot to consider for obvious reasons but I think I've found a dandy.  I'm hoping to purchase it by Friday if everything goes as planned.

Tyler has been obsessed with golf lately.  I neglected to mention that he got his first hole-in-one on Easter Sunday.  Tyler also had his first golf meet on Tuesday.  He took 1st place out of 60 players and finished with a score of 38 after 9 holes.  Not too bad for a kid who has never had lessons!

As always, thanks to those of you who have helped this damsel and her family over the past week.  The Kuennens would be lost without their family and friends!

April 16, 2009

Note from Anne:

The message below was sent to me by my Aunt Darcy.  It speaks volumes.

Creating What We Don’t Want
When Worry becomes A Prayer

If prayer is an intention that we announce to the universe in order to create a desired outcome, then our every thought is a prayer. This includes thoughts of worry as well as of hope. All thoughts are subtle creative energy. Some thoughts are more focused or repeated more often, gathering strength. Some are written down or spoken, giving them even greater power. Every thought we have is part of a process whereby we cocreate our experience and our reality with the universe. When we use our creative energy unconsciously, we create what is commonly known as self-fulfilling prophecy. In essence, when we worry, we are repeatedly praying and lending our energy to the creation of something we don’t want.

The good news is that we can retrain our minds and thoughts to focus our energy on what we do desire to bring into our lives. Since most worry is repetitive, it will take more than one positive thought to counteract the energy we’ve created. The simplest antidote to worry is affirmations. When we hold these positive thoughts, repeat them often, speak them and write them and refer to them throughout our day, we are using focused energy to create positive results.

We can start right away, together: I am a creative being, using my energy to cocreate a wonderful world. I know that I create my experience of life from within, and as I do so, I also create ripples of energy around me that echo into the world. My positive thoughts gather together with the thoughts and prayers of others, and together we create enough positive energy to heal not only our own lives but the world we share. I am grateful for the ability to cocreate good in my life and in the world.

A lot of times we have concerned loved ones that worry about us. When this happens they are also sending out a worry prayer to the world. A loving conversation letting them know what is happening is the easiest solution. Also, ask them to send you positive affirmations rather than worry about you. After all, worry doesn’t do them any good either. Explain to them that worry can actually be energetically harmful to you and that wishing good things for you is much more beneficial and much more fun too.

April 12, 2009

Happy Easter to all! It is gorgeous today.  Enjoy.

April 11, 2009

We just found out that the mother of our dear friend Nancy has stomach cancer.  Please keep the family in your prayers.

April 7, 2009
Note from Anne:

Good news for Jeff!  He has really shown benefits from his weekly massages and his range of motion exercises.  His arms and shoulders move easier and with less discomfort.  To all of our friends who lay their healing hands on him, THANK YOU!

Jeff's brothers, Eric and Jim, were here for a few days.  They were very helpful!  It's great to have people take charge and lift some of the responsibility off of my shoulders.  Thanks for the laughs and the extra assistance.  I was able to get away and have some fun on Saturday with a friend from work.  She gave me a very generous gift from several of my coworkers to Spalon Montage.

My dad arrives tonight and my mom will fly here from Chicago Thursday night.  I am grateful that they have arranged their schedules to spend Easter weekend with us and provide additional help so I can get some much needed rest.  I've acquired a cold and spent all day yesterday with a migraine and neck stiffness.  Like Jeff, I have good days and bad.  I sent an S.O.S. to Jeff's massage therapist late yesterday afternoon.  She came over and relieved the majority of my pain.  She is a gem!

We have two power wheelchairs in our home that Jeff needs to trial.  The weather has not been warm enough for him to go outside and test them but the forecast shows a little heat wave coming our way this week. 

We are making huge progress with the lotsahelpinghands calendar.  Kudos to each of the coordinators who've spent a tremendous amount of time organizing our lives.  We are indebted to all of the members who volunteer to help us everyday.

March 29, 2009

Note from Anne:

 It has been a busy week. The ALS Association (MN Chapter) has a respite program that pays for 24 hours of service per month for PALS and their families.   We met with a nurse on Monday who will assist us in setting up home health aide visits covered through this respite program. 

Jeff was evaluated for a power wheelchair on Thursday. The w/c will be ordered to fit Jeff's unique needs and modifications will be made as his disease progresses.  His w/c probably won't be ready until June or July but we may be able to use a similar chair from the ALS Association's loan pool, in the meantime.

An occupational therapist visited our home on Friday.  Jeff now has a big button controller for his hospital bed.  This is so much easier for him to operate.  He also has a new alarm button that he uses to call for assistance within the house when people are not in the same room with him. 

My mom was here for a week and left this past Tuesday.  Jeff's parents arrived on Thursday and left early this am.  Many people have either called or emailed to send well wishes and support.  Others have sent cards, donations, flowers, food and hugs.  We have had friends and family volunteer their time to help organize our hectic schedule, clean our house and sweep out the garage. Another family took Tyler on a golf trip to Nevada. The list of angels that that watch over us is endless.

We thank you and love you all!

March 21, 2009

Note from Anne:

It has been a roller coaster ride this week. Our family has been hit with some difficult challenges that have really tested our resolve.  We are very thankful for all of the wonderful people who are taking many hours out of each day to help assist us.  It is difficult for me especially because I feel guilty for robbing others of their time for our benefit.  I wish my body was healthy so I could contribute more. 

We are in the process of implementing a user friendly and interactive calendar that will coordinate our needs to those who wish to volunteer.  A few members of Jeff's "Share The Care" group AKA "Jeff's Crue" are managing the calendar and it is their hope that the site will be ready for use early next week.  I will then post a link to the site for anyone who wishes to contribute.  Please spread the word.  We'll take all the help we can get. 

Thanks for all of the love and support you send our way!

March 15, 2009

Please click on the "NEWS" tab on the WELCOME page for a current update.

MARCH 5TH, 2009
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HAPPY BIRTHDAY JOE MARXEN...AKA..."JUNIOR"
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HOPE ALL IS WELL N NYC...

MARCH 4TH, 2009
 GOT OUT OVER THE WEEKEND TO TYLER'S GAMES. SAME OLD STUFF HERE. GOT A MASSAGE TODAY. I LOOK FORWARD TO THAT. I'M NICE AND LOOSE NOW.
 WARMER WEATHER ON THE WAY...ENJOY

FEB 24TH, 2009
 I NOW HAVE A WHEELCHAIR....IT'S A HARD STEP FOR ME. I'VE BEEN DREADING THIS FOR AWHILE. I STILL WALK, BUT THIS COMES IN HANDY FOR GOING TO EVENTS. MY 1ST WHEELCHAIR RIDE WAS TO SEE MOTLEY CRUE, AND THEN THIS WEEKEND TO WATCH TY PLAY BALL. JUST AN UPDATE, GOTTA GO...CYA

FEB 20TH, 2009
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HAPPY BIRTHDAY DAD...
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HAVE A GREAT TIME IN D.C. U OL FART...JUST KIDDIN!!
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I LOVE U

FEB 19TH, 2009
 LAST NIGHT I TOOK TYLER TO HIS 1ST CONCERT. MY ALL TIME FAVORITE BAND....MOTLEY CRUE.......CALL IT WEIRD, BUT IT'S JUST ANOTHER WAY FOR US TO BOND, AND SHOW HIM THINGS THAT I LIKED WHEN I WAS HIS AGE. WELL, I'M STILL A CRUE FAN. HE LOVED THE CONCERT. IT MADE MY NIGHT WHEN HE SAID "I'M SO PUMPED RIGHT NOW, THIS IS SO AWESOME" RIGHT BEFORE THEY TOOK THE STAGE. WHAT A GREAT NIGHT. THANKS TO MY GOOD FRIENDS DALE AND THERESA FOR MAKING IT HAPPEN. GOTTA GO...

FEB 9TH, 2009
 CONGRATS TO THE 8TH GRADE WACONIA TRAVELING BASKETBALL TEAM!!! THEY WON THE EDINA TOURNAMANT THIS WEEKEND. THEY DID SO BY BEATING THE LIKES OF HOPKINS, WAYZATA, AND CHASKA. ALL TOP A TEAMS IN THE STATE. TYLER HAD THE BEST OUTING  OF THE YEAR, INCLUDING 21 AGAINST HOPKINS. GOOD JOB BOYS, LOOKS LIKE THE HARD WORK IS PAYING OFF..QUITE THE TEAM EFFORT.
 

FEB 8TH, 2009
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HAPPY 22ND BIRTHDAY NICK!!!!!!!!!!!
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YOU'RE QUITE THE BIG BROTHER, AND SON. I'M SO PROUD OF YOU.
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LOVE YA JEFF

FEB 3RD, 2009
 WINTER IS GETN THE BEST OF ME NOW. I KNOW I SPEAK FOR A LOT PEOPLE WHEN I SAY THIS. IT'S BEEN A LONG WINTER, AND IT'S ONLY EARLY FEB. OH WELL, SUN N  FUN IS ON THE WAY.
 I'VE BEEN GETTING MASSAGES ONCE A WEEK...FEELS GREAT, JUST WISH IT LASTED FOR A FEW DAYS.
 MY FRIEND "MOLTEN" DROPPED OFF A BUNCH OF MOVIES. BETWEEN THAT AND NETFLIX, I SHOULD BE A MOVIE CRITIC.
 REALLY ENJOYED SUPERBOWL, ATLEAST A CLOSE GAME.
  GOTTA GO FOR NOW....ENJOY

JAN 29TH, 2009
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HAPPY ANNIVERSARY TO MY BEAUTIFUL WIFE OF 15 YEARS. STILL AS SEXY AS THE DAY I MET YOU..I LOVE YOU...
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JAN 26TH, 2009
 JUST GOT NEWS THAT 2 PEOPLE FROM MY SUPPORT GROUP PASSED AWAY OVER THE WEEKEND. IT'S ALWAYS TOUGH GETTING THAT NEWS, BUT IT'S SAD REALITY.
 MANY PEOPLE WHO READ THESE DIARIES TRY TO REACH OUT AND HELP IN SOME WAY. I APPRECIATE ALL THE EMAILS SUGGESTING IDEAS OF VITAMINS, TEAS, THERAPIES, ETC...TRUST ME WHEN I SAY, I'VE RESEARCHED AND TRIED SOME OF THEM. I WANT TO LIVE.....BUT I HAVE A FATAL DISEASE..IF SOMEBODY HAD THE CURE, THEY'D BE 2 THINGS. RICH AND FAMOUS.
 IT'S TIME TO MOVE ON...IF YOU SPEND ALL YOU'RE TIME TRYING TO CHASE STAYING ALIVE, YOU WON'T LIVE.

Jan 20th,2009
 Little recap of the last week. I got my Xmas present from Anne. She arranged an in home massage for me. Let's just say, it was so good that I arranged another one.
 The ear fluttering came back with a vingance for two days, but then quickly left. What a relief that was...
 Tyler was home for five days due to weather, conferences, and holiday. Anne's brother Jake, and kids came by Saturday to visit and bring some tastey food.
 Sunday was a big day for me...I went to Tyler's basketball tournament..They won it in OT by one..Then stopped at a friends house  to watch football for few hours and visit. I got to see some of my good buddies from Pipeline. It was a great day, but it kicked my ass.
 Gotta go for now..  

JAN 13TH, 2008
 I'VE BEEN DOING A LOT OF RESISTANCE STRETCHING WITH RUBBER STRAPS. i KEEP PUSHING THE LIMIT MORE EACH DAY. THE PAIN IS WORSE, BUT I THINK IT'S WHAT I NEED TO DO.
 LIL CRABBY LAST COUPLE DAYS...JUST GETS SO FRUSTRATING, BUT FINE NOW.
 HAD LOTS OF FRIENDS STOPPING BY TO VISIT..I DON'T TALK A WHOLE LOT, BUT I ENJOY IT.
 WE EVEN HAD THE CRUE THAT WENT TO CABO OVER FOR FONDUE SATURDAY..SO MUCH FUN.
 GOTTA GO FOR NOW...

Jan 6th, 2009
 Happy New Year...It was great start to 2009..Watching Iowa win the Outback Bowl with my dad.
 The trip to Iowa for the Christmas was a good change of scenery for me.  I  didn't get out much, but I got to spend some quality time with my mom, dad, and brother Jim. 
 I went to a party the day after Christmas at my good ol friend Jeff Hirsch's. He invited a bunch of our high school buddies. Laughed alot and had the best time.
 My body keeps going to hell right in front of me. I can't even open my hands all the way, due to muscle loss. My speech is getting so bad. I walk so slow and unsteady. It takes everything I have to shower, shave, and get dress everyday, and I still need help. Most days it's a challenge for me to finish my dinner, because I get so tired.
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 For the most part I try to stay upbeat. Every day is a new challenge for me, and my family.
 A quote I live by from my grandpa Arnie Kuennen..."Live each day as though it's your last."
 
 

Dec 22nd, 2008
 Merry Christmas and Happy Holidays to all. We're off to Iowa tomorrow.

Dec 19th, 2008
 Hope everybody's getn excited for Christmas, I know I am. A white christmas won't be a problem this year. Getting there may be. I just heard Dubuque got 10" of snow, and more on the way.
 I'm getting so stiff and sore. It's time for me to start movin. No reason to sit around and complain about it anymore. Never been one to start a New Year's resolution, but this year I am.
 

Dec 9th, 2008
 Had a nice weekend. Tyler's basketball team and parents came by Saturday to visit. We ordered pizza and watched football. I haven't been to the games this year, so it was so nice to see all of them. It made my day!!
 We just got 4" of snow and now it's going to get really cold. Oh well, we should have a white Christmas.
 Still feeling pretty good. My shoulders are getting so sore, that it's been hard to sleep. What's a person to do? Looking forward to Christmas, only two weeks away.

Dec 5th, 2008
 The ear fluttering and dizziness is gone. It's been a week, so I'm pretty sure I've seen the last of that.
 I'm having a tougher time with my shoulders getting so sore. I stretch constantly, but even that relief doesn't last long. The good thing is I can still walk, talk, and eat..not all at the same time though...lol..Much slower, but I still can.
 I also have been fitted for splints for my hands. I wear these to bed to keep my hands from cramping up. Seems to help so far.
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 On another note, Anne and I would like to remember the Beck family. Last year at this time,  Renee lost her mother in law to ALS. She is ALS volunteer who comes to visit every week.  Renee..you're my angel..Thank you so much.

Nov 30th, 2008
 Had a great Thanksgiving... Lots of food, family, and laughs.It's been a tough and trying year, but this holiday is what it's all about.  I have so much to be thankful for...I also want to thank everybody again for all their love and support this last year. I don't know where I'd be without it.

Nov 26th, 2008
 I had my tests done this am and everything came back fine. They put me through all kinds of balance and inner ear tests. I felt worse when I left the place. I now have fluttering in both ears.
 Anne and her mom have been cooking all day. Wow, does it smell good. I'm looking forward to eating all that great food.
 
 

Nov 24th, 2008
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HOW BOUT THOSE HAWKEYES!!!!!!!!!
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55-0 IS A BEAUTIFUL THING FOR A HAWKEYE FAN LIVIN IN GOPHER COUNTRY.
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Had a great weekend just hanging with my brother Eric, Anne, and Ty watchn football. I'm still feeling the same. I have good and bad days. If and when this ear problem goes away it'll much better. Looking forward to seeing all of Anne's family this week.
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DID I MENTION THE HAWKEYES BEAT MINNESOTA 55-0..Sorry had to throw that in there..it's gonna be a long basketball season.

Nov 18th, 2008
 Waiting for my MRI results. I went to the ENT doctor yesterday. My hearing is excellent. And they always said that the Motley Crue concerts would affect my hearing. Ha!! Going back next week for a 3 hour test with some new state of the art  balancing equipment.
 Gotta go for now..Still feeling the same...

Nov 13th, 2008
 Still feeling lousy. I went to my Doctor on Monday and they ruled out vertigo and all my labs came back fine. I'm going to get an MRI tomorrow night, and then off to Ear, Nose, and Throat doctor on Monday. Whatever it is, it's not a good feeling. I have a constant fluttering in my left ear, light headed, and weak. It's been 2 weeks today, and it's taking a toll.  I can't do anything without feeling worse, and Anne's unable to leave  of fear of me falling. Hopefully I get some answers soon. I'll keep you posted..

Nov 7th, 2008
Just a quick note from Anne about Jeff.....
Jeff continues to feel lousy.  He is weak and dizzy with some nausea on occasion.  He has had these symptoms for about a week when he began having fasciculations in his inner ear.  I suspect he may be experiencing vertigo but he could have a virus.  Who knows?  Anyway, he will be seen by his internist on Monday to try and sort this out.  In the meantime, your prayers and well wishes are most welcome!

Nov 4th, 2008
 Anne and I went to vote this am. I'm having one of those tough days. It seems to be every other day. I'm weaker, tired, and dizzy. The good thing is, my back is feeling better. Not a whole lot more to report. Get out to vote!!!

Nov 3rd, 2008
 Had a great day yesterday. A bunch of my friends came by with food and we sat around and watched football for a few hours. I love football and watching with my good friends makes even better.
 

Nov 2nd, 2008
 Last Tuesday I tripped getting out pf my recliner, but caught myself from falling. I pulled muscles in my lower back, and couldn't stand up. Wednesday I laid around all day and iced it.Thursday I got up to go to the doctor, and noticed this fluttering in my left ear. Now that I'm up, I noticed that I'm dizzy also.
 Well, here's an update from my 3 month checkup.
*Got a flu shot
*Looked at my back, just strained. RX should help.
*Told me that fluttering in my ear and my balance issues may go away, wait and see.
*Updated all my meds.
*Sending me to PT to loosen up my shoulders.
*Breathing still good. 84% down from last time..
*Looked at feeding tube, decided to cauterize some skin around it. Otherwise looks good. Hopefully you weren't eating while reading this.
Pretty much sums it up for now.

Oct 28th, 2008
 Just noticed that we've had over 10,000 visitors to the web page since we started it. Pretty impressive!! Thanks for stoppin by and sharing you're thoughts and prayers with me. Take care.....

Oct 26th, 2008
 Just hanging out all day watching football. Perfect day for it. Cold, windy, and first snow flurries of the year. Time to fly south with the birds.
 I celebrated my birthday several times this last week. Gotta love that.
 Not much on the health news right now. I go back for my 3 month check up this Thursday. I always hate that day. Not sure why I even go to it. Oh well..
 Thanks for all the birthday wishes... Enjoy

Oct 20th, 2008
 Frustrating times this weekend. Everything I do takes a toll on me. If I shower, I have to lay down for a while. When I get dressed, I get cramped up. When I eat, I can only go so long before my arms  get tired.  It's bad enough knowing you're dying, but not being able to do the  simple things in life is frustrating.
 These times are getting tougher on Anne and Tyler, because their here all the time. It's a constant reminder every hour of every day. Tyler has had to do a lot more around here, and at the same time watch his dad deteriorate. Then there's Anne. She not only does everything around here, she takes care of me and Tyler. What can  I say, I married an incredible woman. I don't know how she does it all.  I love you guys very much!!!!!!
 Thanks to everybody for the encouraging emails. They really make my day.

OCT 15TH, 2008
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HAPPY 34TH BIRTHDAY ERIC!!!!!!!!!!!!!!!!!!
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I LOVE YA BRO...
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OCT 13TH, 2008
 NEW PICTURES POSTED, IF YOU DIDN'T KNOW.
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I KNOW IT'S BEEN AWHILE, BUT I WENT TO DUBUQUE FOR THE WEEK. I WENT BACK WITH MY BROTHER AND MOM, AND CAUGHT A RIDE BACK LAST NIGHT WITH MY FRIEND DALE. WE DIDN'T TELL MY DAD I WAS COMING, HE WAS QUITE SURPRISED, MY OTHER BROTHER WAS IN IOWA ON BUSINESS, AND I SURPRISED HIM TOO. IT WAS A GREAT WEEK HANGING OUT WITH MY FAMILY.  ENJOYED A LOT OF GOOD WEATHER, FOOD, AND LAUGHS.
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HAPPY 40TH BIRTHDAY TO MY BROTHER JIM!!!!!
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Oct 3rd, 2008
 Spent most of the week getting back on my feet. I feel pretty good now. Steve and Rak took me out fishing on lake Waconia for a few hours yesterday. It was so nice to just chill on the lake and enjoy all the leaves starting to change.
 Today my other brother Jim and mom come into town for a few days. I'm really looking forward to hanging out with them. I'll try to get the pictures from the golf benefit posted this weekend. Have a great weekend.
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Ok, let's get something straight!!!!
My good friend Donna keeps writing like I'm a Twins fan.....WRONG!!!!....
White Sox forever!!!! Al Central Champs.
She's just caught up in Cub mania..After last nights game, they could be done before the Sox.
All kidding aside, good luck to to biggest Cub fan I know..I love you Donna.
 

Sept 30, 2008
  The golf outing was top notch. Exactly what I'd expect from my friends from Pipeline!! The day started off a little chilly, but turned into a beautiful day. I rode around in a cart for 9 holes with Anne, and Jay McDonald(High School buddy). I live so close that I went home to rest for an hour, and was back before anybody finished golfing. Friends started showing up for dinner, and the golfers we're coming in from the course. The dinner was fabulous and the auction was even better. It becomes overwhelming when everybody wants to give you a hug and tell you how much they care. I broke down and cried for an hour straight. It turned out to be such a great day for me and my family. A day I won't forget...Thank you to all the people who made this possible.
 I ended this perfect day with a bonfire in my backyard with my parents, brother, and high school buddies. Thanks again to everybody..Enjoy..
PS: Check back for pictures...

Sept 25th, 2008
 Golf outing is this Sunday. I'm looking forward to seeing all my friends and family. Today one of my brothers flies in and Saturday my mom,dad, and Nick come in.
 I hear the golf event is full, but come for the dinner. Should be a lot of fun and the weather is supposed to be nice. I'm just going to hang out with my family for the next few days. Bonfires on a nice fall day..Gotta love that.
 If you can't make Sunday, check back next week for tons of pictures..Bye for now.

Sept 23rd, 2008
 I just heard that Wally Hilgenberg died from his battle with ALS today.Wally was a former Iowa Hawkeye and Minnesota Viking player. Everywhere I turn it's a constant reminder of this terrible disease. It's on Tv a lot lately because the ALS walk is Saturday.  I'm sure it's always been on, I'm just more aware of it now.
 Even my brother in law Ben's favorite MLB player Derrick Jeter broke Lou Gehrig's record this week before they closed the door's on Yankee stadium.
 Gotta go for now, Anne needs her computer back. Time to get a laptop..Later                              

Sept 16th, 2008
 This is one of those challenging days. My body is taking a hit, and you just can't stop it. It's so frustrating to watch your body go to hell..Mentally and physically it starts to drain you.
 Life right now is like a double edged sword...The more I do, the more I get tired...On the other hand..If I sit around, I get so stiff and sore..
 Trying to find the happy medium is the trick.
Everybody has challenges in life, and I guess I know what mine is from now on. This disease will win in the long run, but a long run is what it's going to be!!!!

Sept 15th, 2008
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HAPPY 14TH BIRTHDAY TYLER!!!!!!!!!!!!
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Sept 13th, 2008
What a great day. Well, actually it's a dreary wet day........but.........
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IOWA BEATS IOWA STATE!!!!!!!!!!!!!!!!!!!
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3 AND 0 and on the way to the BCS Chamionship...
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Ok, back to reality.....maybe we'll win half of our games now.
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**********GO HAWKEYES******************

Sept 11th, 2008
 Seven years ago today, the world changed as we knew it. These people never got to say goodbye to their loved ones.That means more to me now than ever. Do you remember what you we're doing that day?? Most people do. Let's take a moment today and remember those people of 9/11.

Sept 8th, 2008
 I felt better today than I have in a long time. It's probably a combo of  a lot things. Rest, fluids, food, stretching...I've noticed my muscles getting stiffer. I need to stretch constantly. I try to go for a little walk everyday just to get my body loosened up. All is well with my feeding tube. Not a whole lot more to report right now.
 It's a great time of year, football has arrived.To bad the Vikes lost tonight.
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Oh well, we're used to it...After all, we're Vikings fans!!!

Sept 5th, 2008
 HAPPY 18TH BIRTHDAY TO MY BEAUTIFUL DAUGHTER STEFFANIE!!!!
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Check out the 1st link under the links page for the wonderful job she did with her ALS Walk page in Arizona. When you go there, click on her name under team captain and read her story,
Enjoy....

Sept 3rd, 2008
 Just got home with Tyler from our annual Pipeline fantasy football draft.  As usual you get home and look at your team and say "I hate my team". It's been 15 years now, and we're still going at it. Gotta go for now C ya..

Aug 31st, 2008
 Wow!! Where the hell did the summer go?? Last day of August already. It's a nice hot and windy day. Feels great!!  Haven't done much all week, but take it easy. Tyler and I built a fire pit in our backyard yesterday. Actually, he built it, I was the supervisor. I'm looking forward to some fires this fall..Well,the smores are pretty good too.
 My favorite mother in law Janet came to visit from Chicago for the weekend. She came to fatten me up. Let's see, homemade banana cream pie, lasagna, fried chicken, etc...you get the idea.  Have to go for now, dinners callin. C ya...

Aug 26th, 2008
 I can finally stand straight up and get out of a chair without much pain now. The first few days we're pretty sore.  Surgery went well, and I'm using the feeding tube a few times a day. I still eat all my meals, but this helps keep up and let me pump in alot of water. I think that this was the right choice at the right time. This surgery kicked my ass..So I think it was wise to do while I'm strong.
 My parents came up on Friday and stayed for a few days to watch Tyler until we got home from the hospital. It was nice to have them come up. I have a busy week ahead. Enjoy..

Aug 24th, 2008
 I'm back at home. Surgery went well. I'll write more tomorrow..It's all good...

Aug 21st, 2008
 Eve of my surgery..I'm not really nervous at all tonight. I'm sure I will be tomorrow. They moved up my time to 7:30am..I'm off to bed.Got to get up early. C ya.

Aug 19th, 2008
 Had a great time at Rainy Lake this weekend. Fishing was horrible, but I'll take good weather  and great family time any day.  Thanks to Gary, Cheryl, and their son Dana for such a good time. I feel helpless when I go there now, because I can't do much to help. I've never been one to sit and not help out. I did have something neat happen to me one night. I was just sittin there by the campfire, when a deer walked out of the woods and up to about 30 feet away. He  just looked at me for couple minutes and walked back into the woods.
 I've been so tired since I got home. I can feel my legs getting weaker, and my balance getting worse. I was up most of the night with major cramps. I will have a cramp one time, and then a muscle lock up the next. I'm not sure what's worse. They both suck!! I went to my pre-op physical yesterday, and I'm all cleared for my surgery Friday. I'm so thrilled I can't stand it. Off to enjoy the day, hope you do the same..
PS: I did catch a 4-5 lb walleye this weekend.

Aug 13th, 2008
 Tough day as far as the health goes. The last two days have been filled with a lot fatigue and stiffness. I move slower, limp more, and talk worse. The twitching has been out of control at times, and has moved into my legs more. I can feel every muscle in my leg when I walk. Enough of the bad news for now.
 I'm off to Rainy Lake for a few days of fishing with Anne and Tyler. Anne's  aunt and uncle have a cabin on an island between International Falls,Mn and Canada. We usually go up every summer, and have such a good time. It's so peaceful. You feel like you're in another world. Hopefully we catch a lot of fish. I will post pictures when I return. Take care..

Aug 9th, 2008
 Well, I went  the annual Carver County fair Wednesday night. Enjoyed the motocross, pork burgers, and cold beer.  I drop Tyler off everyday at the fair, but won't pick him up unless he buys me a pork burger.Well, I guess it's my money, but you get the idea. It's a quick five days, but it's fun. I spent most of the day watchin friends and neighbors  work on getting my garage ready for the ramp that will be installed this fall. I can't tell you how grateful I am. I just  had  a big steak on the grill, and thinkin about a waffle cone with butter pecan ice cream. I might have to wait..I have to pick Tyler up soon, and you know what that means..Pork burger..Ok, maybe I'll shake it up a little and go for the cheese curds. Gotta go for now..Have a great night..

Aug 5th, 2008
 I've made the decision to have a feeding tube placed in 2 weeks. Toughest decision I've had to make so far with this disease. I'm getting tired just from eating, and losing weight. My Doctors told me I could wait, but it's easier sooner than later. I need the nutrition to preserve what muscle I have left.  As of now, I'm on a high calorie,high protein diet. Just think of all the bad shit people avoid eating..Not me..give me some more!!! The one thing thats going well is my breathing. My breathing is almost normal, and has gotten better over time. i wish I could say that about my muscles. Enough for tonight...Gotta go..

July 31st, 2008
 Got back from a relaxing weekend at the cabin with Anne's family. Fishing wasn't much to brag about, but the beer was cold, and the laughs we're plenty. The last 24 hours we're a whirlwind of emotions. Last night i went to the Sox/Twins game, and then turned around this a.m. and went back downtown to my 3 month ALS clinic. One minute your enjoyin a beer and watchn baseball, and then 12 hours later you're talking feeding tubes and walkers. Enough for tonight, it's been a long day. I'll write more tomorrow, gotta go watch the Sox kick the Twins around. Good night..

July 26th, 2008
 Just thought I'd write before I left for the weekend. I'm off to the Brainerd area with Anne's family to hang out on the lake and do some relaxin. I'm sure fishin and   drinkin might come into play. Not much different on health right now. Some days are tougher than others, but whatcha gonna do. I have to get packed. Let's see, fishing poles, beer, umm that should do it..Take care

July 21st, 2008
 Monday morning and just enjoying a little coffee. I've been getting worse as far the health goes. I notice that I'm getting slower and weaker. Mostly in my arms still, but moving into my legs more and more each day. Anything involving lifting my arms is an effort. Eating, drinking, washing your hair. My right leg is getting weaker. I'm starting to get a limp when I walk, due to my left leg taking over. I do better on the move. If I sit too long and then get up to walk, my leg will stiffen up. My speech is getting worse also. I will going next week for my 3 month ALS checkup. All that is basically is charting every 3 months, how fast your dying. I really look forward to those appts.
 Enough about the health..I had a great weekend. I went out on a boat with friends, and went to Sunsets on the lake for dinner. Saturday went to a cookout at some of my old neighbors house. Laughed alot and had great food. Now I have Nick back from college for the week and Anne's dad here for 2 weeks. I'm really looking forward to that. Gotta go for now..Take care.

July 13th, 2008
 Hangin out on a Sunday evening..Had a great Saturday grillin out with Jake/Cathy and kids. Just enjoyed the weather today, and going through fishing poles and tackle. A job that was way overdue. I find a lot  of those jobs lately. I'm feeling about the same this weekend. No big news from the health side. I have a busy week ahead with running from baseball playoffs and golf tourneys. Have great night..
***Oh yeah, I did change my page to Dolphins colors..Hope you enjoy!!

July 10th, 2008
 I've had a few falls lately, mainly going down steps. I think it's more balance and strength right now. I've never really tripped on anything yet. This stuff brings all kinds of questions into play. Something we're working on, and trying to prepare for whats next. So far, no big injuries. But, thats what we need to address so I don't get injured. I mean, I have fantasy football coming up soon, and I don't want to be on the IR. All kidding aside, this will take us to the next level. We need to stay ahead of this disease, cause things can change so fast. I also want to say thanks for all  you do for me to my beautiful wife Anne. She makes so many phone calls, fills out so many forms,works at the hospital, and takes care of Tyler and I. You're the best. That's all for now..Take care.

July 8th, 2008
 Feeling much better today. It's amazing how you can feel from one day to another. Going to be day of chillin. Tyler has his first of many golf tournaments starting tomorrow in Hutchinson. I'm sure we'll be off to the driving range sometime today. FYI- I now have a webcam, and go through www.skype.com. It's free..It's been a great way to see my family. Email me if you have a question. Take care..Enjoying the summer.

July 6th, 2008
 This dreaded disease is kickin my ass tonight. I'm really weak and tired. Nights like tonight really get me pissed off!! I'm just having a bad night. Sometimes you just have to say "fuck it" and get mad. You have to have an attitude when you're fighting this..Don't get me wrong..I break down from time to time, but most of the time you can't give in. I'm sure I'll be better tomorrow. Atleast thats what I tell myself everyday. Take care Cya..

July 5th, 2008
 Finally feeling rested today. I went fishing all day last weekend and it kicked my ass. It's a touchy decision to make some days. Do I do it?? or do I not?? The tough thing me right now is how much do I do. It's a bitch when you're able to do it, and you have the desire, but your body is saying no way. I'm learning everyday..I have to pick and choose my battles. Like fishing..I can still  fish, but I can't be out all day and being flying across the lake going 60 mph.. After that stunt, I could barely move for days.
 Well, hope everyone had a good July 4th. We did, just hanging on Lake Minnetonka on a pontoon. A nice relaxing day.
PS:One thing good thing about that fishing day..I caught my biggest walleye ever. 26" on Millacs. Take care..

July 2nd, 2008
 I want to send a few thank yous out to some very special people in my life.
1st-Thank you to my favorite mother in law, Janet Marxen. With out her, there wouldn't have been a benefit. She was the one that put a fire under everybody's asses when there we're down and out.
***-Thank you to my brother Jim for rounding up all the food and getting vendors to help support the cause. You worked your ass off. I love you bro.
***-Jackie, where would I be without you there. Thank you for all the long hours you put in. Oh yeah, and letting us keep all the auction items in your house for how many months.
***-My little brother Eric for lining everything up with Steffanie and speaking at the benefit. Thanks for all you do!! I love you bro.
***-Dad, thanks for keeping this thing rolling with all the phone calls, and meetings you had. Relax and enjoy the summer now.
***Thank you to Karen Lyness for endless hours of work.
***Thanks to Michael Ready for your direction and hours of work.
***Andy Hawkinson(CEO DuTrac) for all you help.
***Steffanie, thank you for coming, it made my week. You really surprised me.I love very much..It's not fair to make your dad cry like that.
***Thank you to all my friends and family for all your support. You came from all over the country for this benefit, and it meant so much to me. How could a guy give up on life, when he has so much to live for!! I'm a one lucky guy!! Thank you so much..

June 29th, 2008
  Back from a great week in Iowa with friends and family. Benefit went great. Check back tomorrow for details..
 Check out the photo section for some newly added pictures..Bye for now.

June 20th, 2008
 Just got home from hanging with a bunch of good friends from Pipeline. It's so good to see them again, I miss those days!! I just have to get ready for traveling to Iowa. Hopefully see you at the benefit Sunday. Check back later..Have a good one,.

June 18th, 2008
 It's a sad day today. I lost another fellow ALS support member today. I only met Kaki Steen one time in support group. I remember looking across the table at her, as she smiled. I did not know you very long Kaki Steen, but I will remember that smile. Please offer up any prayers for the Steen family at this tough time. We'll miss you..

June 15th, 2008
 HAPPY FATHERS DAY DAD!!! A true meaning of a father is my dad RUSS. Anybody that knows him would agree. Everything I learned, I learned from the best. I'm told quite often how my kids are such good kids. Like all dads, that makes feel pretty proud. So dad, have a great fathers day, and tell mo to give you a break today.
 

June 11th, 2008
 Good morning to all..It sure is nice to hear from everybody. I wanted to give a lot of you updates on how I'm doing. I no longer work anymore. I officially retired May 15th. I'm planning on enjoying my summer, it could be my last good one. I have weakness in my arms and hands. It's beginning to be a struggle to lift my arms above my shoulders. My speech is slurred, but you can still understand me. My legs haven't been affected too bad yet. I'm able to walk well, but sometimes my leg will stiffen up after sitting for awhile. This disease basically robs you of all your muscle. I have lost muscle in my arms and thats why it gets harder to lift things. I stay positive for the most part, but somedays are tough. I figure I might as well stay positive and enjoy the time I have. I mean, why not. One thing I read all the time is--"I'm living ALS, not dying of ALS". We all need to make adjustments in life, and  this one is mine.  Take care Jeff.
  

June 8th, 2008
 Just a little shout out  to all the Twins fans!!  How bout those WHITE SOX!!! Good weekend..It's always a good weekend when the Sox take 3 in a row from the Twins. I know I live in Minnesota, but I'm a diehard Chicago White Sox fan. It's just as bad being a Hawkeye fan, living in Gopher country..I've been doing ok lately. I mean, I don't want this diary to be doom and gloom all the time. I'm alive and doing just fine!!! Have a great start to the week..Take care Jeff

June 4th, 2008
 I want to send a special birthday wish out to Anne today. Happy 40th!!!! Still as hot as the day I married her. Anybody who visits today, send out a birthday wish to her. Thanks Jeff

June 3rd, 2008
 Here's a quote that got my attention the other day: "This is my one and only life, and it is great and terrible, short and endless thing, but none of us come out alive."

June 2nd, 2008
 Just got home from Tyler's baseball game. Really cold tonight, but I love to be there. I know everyday can't be perfect, but I try to take a little from each day, and tuck it away. I know it sounds like a cliche, but "stop and smell the roses" means a lot more to me now. I have to go for now..Take care.

May 29th. 2008
I just added pictures from our New York trip. Hope you enjoy. I will write more later. Take care.

May 27th, 2008
I thought I better tell you a little bit about my trip to New York. We flew in the night of May 13th and took a cab to Brooklyn to stay with Anne's brother Ben. Where  he a had a big home cooked meal ready for us. Wednesday we went down to neat area by the water and had lunch, and then got on what they call "The Shark". The Shark is a huge speedboat that takes you out by the Statue of Liberty, so you can take pictures. You know your in trouble when you're standing line and everybody is wearing rain gear!! I would recommend it on a sunny day in August, not in early spring.
 On the 14th we just checked out the area a little bit. We walked around Manhatten and Chinatown. There's so much to see, where do you start?
 The 15th Tyler, Ben,Don, and myself went out on our own to see what trouble we could find, while Anne went shopping with her mother and brother Joe. Again we walked around and finally decided to go to the Empire State building. It's very cool thing to do, but wish it was a little clearer day. After all of us went to dinner, we ended the night in a karaoke bar. I never laughed so much.
 May 16th, graduation day for Joe. We met everybody in the morning, and took the Staten Island Ferry to the graduation. This was the only bad weather day we had. It was windy, raining, and about 45. It was a good power nap day. Every night we went out to eat. The food was all incredible, and so much fun.
 Saturday May 17th, Tyler,Nick,Anne, and myself we're off to see the Mets play the Yankees at Yankee Stadium. By the way, this is the last year of Yankee Stadium. The new one is right next to the old one. It's a very cool atmosphere, and it was an incredible day. Hangin with my family on a nice 70 degree day in Yankee Stadium. Best of all, Mets won the game. I hate the Yankees, go White Sox. We ended the day meeting back at Ben's eating homemade jambalaya. It was very yummy. It was good way to end the trip. Just hanging with everybody, before we all went our separate ways tomorrow.
 Sunday May 18th, we flew back home. Everything seems so slow and small here, when you come back from New York. Thats my trip, I hope to have pictures up today some time. Take Care
PS: A big thanks to some very special people that made this trip work out for my family. Marnie and Dale for taking care of our dog Harley. Anne's brother Ben, for letting us stay and show us around NYC. Jim and Laura, my neighbor's who took care of the flights. Congrats to Joe. Gotta go for now.

May 23rd, 2008
I feel ranting a bit today. I had to go to my primary Doctor this week for a full physical. This is all due to the process of filing for disability, and I understand the politics. BUT, my question is why do you need a physical when you've been givin 2-5 years to live?? OOOH your Cholesterol is high, might want to cut back on those french fries..I mean come on...The funniest line was from my Doctor..."you're really healthy" he said. He also said, "you can call back in a couple days for your test results". Like I really give a shit about my test results!!! What could my test results tell me?? I'm already dieing, what the fuck could you tell me that's going to matter? Sorry, I had to throw that in there. It's just, the whole thing pisses me off!! I think I've ranted long enough. Most days I'm never mad, but I had to get that off my chest. Hope you understand...Gotta go for now, later.